Our President, Tim Overton currently chairs the Expert Clinical and Scientific Advisory Panel for the National Congenital Anomalies and Rare Disease Registration Service which oversees the activities of the National Congenital Anomaly Register. There are likely to be some changes in the type of data collected by the register and further details will be available soon. Feel free to contact Tim if you wish to raise any concerns.
27 Sussex Place, Regent's Park
London, NW1 4RG